Thursday, June 16, 2011

Excited Parents!

The title of this first post could have been anything from scared, to nervous, to trusting, to excited.... the list goes on but excited is the first thing that pops into my head when I think about the life that Leah and I are bringing into this world.

Naturally, we will undergo the full spectrum of emotions throughout the pregnancy, as will any expectant parent.  We are preparing for a range of possibilities that are extremely broad and we are faithful that God will work his master plan.  Whatever that plan may be, he will prepare us.
For those of you that we haven't had a chance to talk to, my beautiful bride and I are expecting our first child on October 11th 2011. Parker Mason Brown is the new beginning to our unbelievable family of 3! Last week (week 22 in our pregnancy) Parker was officially diagnosed with a birth defect called Hydrocephalus, this is an excessive build up of fluid in the brain. The root cause is called aqueductal stenosis, a blockage or absense of the path where fluid naturally flows from one part of the brain to the next.

What does this mean? Fluid is building up in Parker's head that would normally circulate through the body and be absorbed. The fluid is competing for space where his brain is trying to form. Yes, this means brain damage is a distinct possibility. Based on the MRI and conversation today, it looks as if all facets of the brain are forming, but the fluid is cramming the brain matter to the edges of the skull. The pediatric neurosurgeon we met at Texas Children's said that it looks like the center of the brain is showing early signs of damage, this is the part of the brain that controls your vision.

Good News, Leah and I are doing extremely well! First and foremost, this news means God has blessed Leah and I with the ability to have a family of our own and we are both thrilled! Secondly, it means we will have to deal with some challenges throughout the pregnancy and throughout Parker's life that may not be normal to most parents and children, but it will be absolutely normal for us.  God will not give us anything that we can't handle and we are in a great position to handle any scenorio that comes our way.

Family and friends are extreme important in our lives and we want to keep everyone informed, educated and comfortable with everything that is and will take place.  We've decided this blog is the best way to do that.
Here are a few of the key things that you may want to know:

This is considered a high risk pregnancy, so Leah will have a c-section.
The day to day managment of the pregnancy will be normal.
The pregnancy is expected to be full term.
Parker will have brain surgery after birth to release the fluid from his head and this will be an attempt to correct the issue that causes the build-up and damage in the brain.  We won't know the extent of the damage until he begins to form his cognitive and motor skills.
60% of children with shunts inserted into their brain will need a subsequent procedure by age 2.
Leah and I are in great hands. We have a team of 5 doctors that are monitoring Mom and baby closely.
Leah will be delivering at St. Lukes in the Medical Center
Parker will then be transferred to Texas Children's for the brain surgery immediately thereafter.
I love my wife and she is awesome!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

We love all of you and we apologize that we cannot inform everyone individually, but we would love to hear from all of you.  Our goal is to keep everyone informed, interested and praying!  We can't wait to see our little boy, and we can't wait to introduce him to all of you!!!!

Love Leah and Dave

P.S.  I will be posting pictures soon, so stay tuned.

7 comments:

  1. Dave & Leah,

    First, Andrea & I just wanted to tell you thank you for keeping us informed about Parker. What unbelievable parents you both will be! Your strength and character ensure that your family will not only make it through these trying times, but grow and emerge even stronger. You guys are not only great friends, but amazing people. Really the kind of people we consider ourselves lucky to know. I hope you know that we will always be here for you- for whatever you may need. So, In honor of (expectant)Father's Day, I am doing two things in which I am not quite so proficient: Blogging (sadly, first timer) and Praying. We love you guys and cannot wait to meet your son.
    -Love Andrea & Ryan

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  2. Dave and Leah,

    First, Hello my name is Tara and my mother Angie works with your mom Leah. Second, God bless you both and Parker. He truly is a blessing from God. Ya'll are in my prayers.
    I am not sure if you know my story but I had my son Jacob 3 months early April 21,2011 and after 13 days of life he took an early flight to heaven due to complications on May 4,2011. I was just shy of starting my 3rd trimester when Jacob was born. I was considered high risk after a blood test was taken in Febuary, the results came back 1% of possible Spine abifda. On my 6 week ultrasound came the bad news,that Jacob would be delivered via emergancy c-section that day of April 21st. My first thought was "oh my gosh! What are we going to do?? God,please give us the strength." So from that day on everything was a dream and to this day it all still feels that way. After Jacob passed away my husband and I decided to have a Life Celebration for Jacob. It is hard for me to sit here and tell you all this. But I belive that God has his way of bringing strangers' together no matter the circumstances. God bless you guys and keep your heads up. Little Parker is being watched over by my little angel and God.
    Peace be with you,
    Tara Cordray

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  3. David and Leah,

    Hey we are praying for you and your family and we know that God has awesome plans for little Parker! We are excited to see how God will use this for His glory. We love you guys and will be praying for you!
    Love,
    Sarah and Donald

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  4. David and Leah,

    Our prayers are with you daily. Thank you for your strong and bold witness of who our God is! He is certainly capable of taking care of Parker. Being a parent of a special needs child demands dependance on our Savior. He gives us grace and daily encouragement to face our days. We love you guys and keep us posted!

    Liz and Steve

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  5. The Duswalt FamilyJune 23, 2011 at 6:40 AM

    David and Leah,

    Praise be to God that He has chosen you two for Parker. Our prayers are with all of you and the wisdom and expertise for your team. Thank you for allowing us to glimpse into your world and although we know there are going to be challenges ahead, we also know that God is going to be with you all the way.

    Mike, Margo, Marissa and Brandon Duswalt

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  6. Hi David and Leah,
    I just wanted to try to give you a little bit of encouragement about the challenges (and joys!) of raising a child who is born with a disability, now that Chad and I are almost two years into our journey with our little Olivia Grace. David, I'm not sure how much you may have heard about Olivia from your folks, but they were prayer warriors for her when she was very little and struggling. Olivia has a rare chromosomal disorder called a "13q Deletion", meaning that part of her 13th chromosome is missing. It has affected her in numerous ways, including profound deafness (she now hears using a cochlear implant), vision impairment (she has glasses), brain/skeletal anomalies, holes in her heart, club feet (now corrected), severe feeding difficulties, and general developmental delays in her cognitive and motor skills.

    So that's the stuff that sounds negative...but here's the beautiful part: Olivia is an amazing, determined, HAPPY, beautiful little girl who brings immense JOY to our lives every day! Yes, there have been many tough days along the way - like when we found out she was deaf, and the day she had to have surgery to have a feeding tube inserted into her stomach. There were days we questioned why God chose our family to deal with something so tough, and why Olivia couldn't be perfectly healthy and "typical" like all of our other friends' babies were. We've had terrible attitudes at times and felt like all of this wasn't "fair" (as ridiculous as that is).

    But for every hard time we've encountered in taking care of Olivia, there has been a small victory or some joyful instance to balance it! She has taught us much about life, God, and our capacity to love. We've had to really lean into God, and He has always brought us through even the toughest days. We've learned not to hold Olivia up to the world's standards of what a 2-year-old should be doing – she’s on her own timetable, but who cares? She’s making progress every day and it's a joy to watch! We've learned to take pride in the smallest of accomplishments, but at the end of the day, I suppose we don't very much care what she's doing (or not doing), as long as she's happy and healthy, which she is - we see it all the time when she smiles and laughs at us!

    So I guess the point of this long rambling post (sorry) is that, while this may not be the path you would have chosen for Parker and your family, it is exactly the path that God intended for you guys, and I hope you take great comfort in that. Raising a child with any degree of special needs may always be somewhat different from raising a completely healthy/typical child, but that doesn't make it any less amazing. The same joys of parenthood are still there - they just may be peppered with some other stuff that most parents don't have to think about, like lots of doctors visits, therapies, etc. And please know that I'm not assuming that Parker will experience the same degree of difficulties that Olivia has - I hope and pray that his hydrocephalus is able to be resolved well via surgery, and that any long-term effects are slim to none. But I just want you to know that even if he does experience some health or developmental issues down the road, he will still be a amazing little boy, and exactly as God planned him to be. Although it took me a while to fully believe it myself, I know now with full confidence that Olivia is exactly as God intended her to be, and she's perfect to us! (Psalm 139:13 - "For you created my inmost being; you knit me together in my mother's womb.")

    If you guys ever want to talk to someone who's been down a similar road, please don't hesitate to contact us:
    Leslie - lesliestevens07@gmail.com; 713-408-4470
    Chad - csteven1@gmail.com; 832-293-7401
    http://oliviastevens.blogspot.com/

    We'll be praying for you guys and for Parker - I'm sure he is covered in prayer by many!

    Leslie & Chad Stevens

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  7. Dear Dave and Leah,

    Reid told us about your precious new one and I've been praying for all of you and thanking God that you are honoring Him by trusting in His perfect will for you and your son. As you well know, all things are possible through God, and that His divine intervention trumps ALL!

    After a major unexpected event in the life of one of my friends, another friend told her " It's like you are standing out in the ocean watching people on the beach enjoying life. When all of a sudden a big, unexpected wave hits you from behind. In that moment you are disoriented, crazy and not functioning like yourself." The friend then told her that she trusted Jesus to wade out there with her. You are doing the same !

    Knowing that prayer moves the hand of God, I will be keeping up with your progress reports as well as praying for our loving Lord to create a canal opening in Parker's brain area that will facilitate the drainage of any excess fluid. May He bless every cell in his body as He " knits him in his Leah's womb." I'm also asking God to guide the intellect of the medical staff who care for Parker and supply all the wisdom they need to bring about the healthy delivery/ treatment of this precious creation.

    For the LORD comforts his people and will have compassion on his afflicted ones. Isaiah 49:13b

    Praise the Lord, because he heard my prayer for help. Psalm 28:6

    blessings, Jeanie and Gerry Essl

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