More Seizures

Coming off the heels of 2 ER visits in the last week and a half we headed into this weekend ready for anything but the med center. Friday afternoon greeted us with a short, 30 second seizure, 2 hours later another one, an hour and a half another one, and so on. In the mean time, we went through the protocol given by the doctors. After talking to the on call neurologist and neuro surgeon, we were told to increase his dosage of Keppra, his daily med. That didn't work, so by the time he seized on Saturday morning around 7am, it lasted 3 minutes and was much less subtle than the earlier episodes. Per the doctors' instructions, we gave Parker a dose of Diastat, which is similar to the meds used when we go to the ER. Fast forward to today and he hasn't seized since we gave him the Diastat. Leah spoke to our Neurologist today for N update and they informed us that His daily meds could take up to 2 weeks to take effect. We're glad to know that now, and glad to spend a weekend at home without meeting any new doctors (in person). As for us, Leah has presents wrapped and under the tree and she's slowly getting ready to go back to work. I am still getting my annual hunts/ fishing trips in while pushing through the year-end madness at work. Parker is the cutest kid in the world and it's time for him to go to bed. Good night

Made it Home

Leah and I are sitting on the couch with Parker sleeping on Leah's lap. Exhausted, yes, happy to be home as a family, absolutely! Being home is one thing, but walking in to a home that looks and smells like Christmas is even more relaxing. After dinner I'm running up to pick up the meds prescribed by our neurologist. The EEG didn't show any signs of seizures, so they prescribed Keppra, a medications typically prescribed for a broad range of seizure activity. Keppra will be a daily medication used 3 times a day and Diastat is his equivalent to an epi pen. If he has an extended seizure, we will use the rectal Diastat. Unfortunately they weren't able to pin point the cause or location of the seizures, but the good news is they have a definitive diagnosis of seizures since the activity stopped in the ER after administering Ativant (ER's version of Diastat that is administered via IV). Time to go change a diaper :)

More Parker Mason Brown Pictures



He's starting to smile!





EEG Testing today - 2 1/2 months





2 month shoot





1 month shoot



Parker Brown's 2nd EEG

Parker is undergoing an EEG right now to monitor his brain activity.  Right now the docs want to determine what type of seizures he is having and where they are happening.  Hopefully the meds that they gave him yesterday will wear off and they can catch one seizure while being monitored.  That should give the specific information they need to answer some of the questions in order to properly medicate. Leah and I are doing well.  We are getting to know the folks around here pretty well.

Parker Mason Brown Update

Leah, Parker and I are in the ER at Texas Children's. Unfortunately this is the second time this week for the nurses and doctors to enjoy our company. Monday afternoon we took Parker to the St. Luke's ER in the Woodlands where they performed a ct scan, x-rays, and blood work. After reviewing the results they transferred is to Texas Children's ER. After multiple tests and a true test of patience, we were admitted to the neurosurgery floor. After spending 15 hours in ER it was wonderful to have a room with a pullout bed and our own restroom. They tested for seizure activity on Tuesday night around midnight with an EEG. After the doctors collaborated on all results, they released Parker and told us their was no certain evidence of seizure activity or shunt failure/ infection, so it could just be a stomach virus that was causing the vomiting, lack of appetite, foaming at the mouth and unresponsiveness. Fast forward to this morning. I got a call from Leah as I was driving back from my annual hunt in El Campo, TX and she said Parker was having seizures. Leah's parents, Lisa and Danny, brought Leah and Parker to the ER where I met them. Parker was seizing every 30 minutes by the time he was admitted. The doctors immediately medicated with Ativan to stop the seizures around 2pm and he hasn't had one since. Based on the ct scan and X-rays the shunt hasn't failed, but conversely done a very good job of draining the fluid from the right ventricle. Based on the blood work, no signs of infection are apparent. Initially, the thought is Parker has formed epilepsy, which was highly anticipated by our neurologist. Once we are admitted to the neurology department, they will likely do another EEG and various other tests as well as determine what medication to administer. Hopefully we will have a positive update soon.